Simon Outram
Qualitative Researcher
Medicine
School of Medicine

Publications (18)

Top publication keywords:
Information Seeking BehaviorSocial ValuesGenetic TestingDrug UsersRare DiseasesCystic FibrosisInformed ConsentParentsChildMoralsGenomicsCommunity Health ServicesDrug OverdoseInventionsFamily

• Author Correction: Diagnostic yield of pediatric and prenatal exome sequencing in a diverse population.
  NPJ genomic medicine 2023 Slavotinek A, Rego S, Sahin-Hodoglugil N, Kvale M, Lianoglou B, Yip T, Hoban H, Outram S, Anguiano B, Chen F, Michelson J, Cilio RM, Curry C, Gallagher RC, Gardner M, Kuperman R, Mendelsohn B, Sherr E…
• The Parent PrU: A measure to assess personal utility of pediatric genomic results.
  Genetics in medicine : official journal of the American College of Medical Genetics 2023 Turbitt E, Kohler JN, Brothers KB, Outram SM, Rini C, Sahin-Hodoglugil N, Leo MC, Biesecker BB
• Barriers and Facilitators of High-Efficiency Clinical Pathway Implementation in Community Hospitals.
  Hospital pediatrics 2023 Outram SM, Rooholamini SN, Desai M, Edwards Y, Ja C, Morton K, Vaughan JH, Shaw JS, Gonzales R, Kaiser SV
• The Need to Standardize the Reanalysis of Genomic Sequencing Results: Findings from Interviews with Underserved Families in Genomic Research.
  Journal of bioethical inquiry 2023 Outram SM, Rego S, Norstad M, Ackerman S
• Insights from Drug Checking Programs: Practicing Bootstrap Public Health Whilst Tailoring to Local Drug User Needs.
  International journal of environmental research and public health 2023 Ondocsin J, Ciccarone D, Moran L, Outram S, Werb D, Thomas L, Arnold EA

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• Diagnostic yield of pediatric and prenatal exome sequencing in a diverse population.
  NPJ genomic medicine 2023 Slavotinek A, Rego S, Sahin-Hodoglugil N, Kvale M, Lianoglou B, Yip T, Hoban H, Outram S, Anguiano B, Chen F, Michelson J, Cilio RM, Curry C, Gallagher RC, Gardner M, Kuperman R, Mendelsohn B, Sherr E…
• Information-seeking preferences in diverse patients receiving a genetic testing result in the Clinical Sequencing Evidence-Generating Research (CSER) study.
  Genetics in medicine : official journal of the American College of Medical Genetics 2023 Slavotinek A, Prasad H, Outram S, Scollon S, Rego S, Yip T, Hoban H, Foreman KM, Kelley W, Finnila C, Berg J, Murali P, Bonini KE, Martin LJ, Hott A
• "I Have Fought for so Many Things": Disadvantaged families' Efforts to Obtain Community-Based Services for Their Child after Genomic Sequencing.
  AJOB empirical bioethics 2023 Ackerman SL, Brown JEH, Zamora A, Outram S
• Medical traumatic stress in cystic fibrosis: A qualitative analysis.
  Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society 2023 Cuneo AA, Outram S, Marsac ML, Vendlinski S, Heyman MB, Ly N, von Scheven E, Perito ER
• The social value of genomic sequencing for disadvantaged families facing rare disease.
  Social science & medicine (1982) 2022 Outram SM, Brown J, Ackerman SL
• The Challenge of Recruiting Diverse Populations into Health Research: An embedded social science perspective.
  New genetics and society 2022 Outram SM, Ackerman SL, Norstad M, Koenig B
• Parental Hopes and Understandings of the Value of Prenatal Diagnostic Genomic Sequencing: A Qualitative Analysis.
  Frontiers in genetics 2022 Outram SM, Brown JEH, Zamora AN, Sahin-Hodoglugil N, Ackerman SL
• "Let's Just Wait Until She's Born": Temporal Factors That Shape Decision-Making for Prenatal Genomic Sequencing Amongst Families Underrepresented in Genomic Research.
  Frontiers in genetics 2022 Brown JEH, Zamora AN, Outram S, Sparks TN, Lianoglou BR, Norstad M, Sahin Hodoglugil NN, Norton ME, Ackerman SL
• Perspectives and preferences regarding genomic secondary findings in underrepresented prenatal and pediatric populations: A mixed-methods approach.
  Genetics in medicine : official journal of the American College of Medical Genetics 2022 Rego S, Hoban H, Outram S, Zamora AN, Chen F, Sahin-Hodoglugil N, Anguiano B, Norstad M, Yip T, Lianoglou B, Sparks TN, Norton ME, Koenig BA, Slavotinek AM, Ackerman SL
• The difficulties of broad data sharing in genomic medicine: Empirical evidence from diverse participants in prenatal and pediatric clinical genomics research.
  Genetics in medicine : official journal of the American College of Medical Genetics 2021 Norstad M, Outram S, Brown JEH, Zamora AN, Koenig BA, Risch N, Norton ME, Slavotinek A, Ackerman SL
• Patient, Caregiver, and Decliner Perspectives on Whether to Enroll in Adaptive Deep Brain Stimulation Research.
  Frontiers in neuroscience 2021 Outram S, Muñoz KA, Kostick-Quenet K, Sanchez CE, Kalwani L, Lavingia R, Torgerson L, Sierra-Mercado D, Robinson JO, Pereira S, Koenig BA, Starr PA, Gunduz A, Foote KD, Okun MS, Goodman WK, McGuire AL…
• Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium.
  Journal of clinical and translational science 2021 Gutierrez AM, Robinson JO, Outram SM, Smith HS, Kraft SA, Donohue KE, Biesecker BB, Brothers KB, Chen F, Hailu B, Hindorff LA, Hoban H, Hsu RL, Knight SJ, Koenig BA, Lewis KL, Lich KH, O'Daniel JM, …
• The Ethics of DTC Neurotechnologies: Mapping Out Social Questions in Advance of Technological Innovation.
  AJOB neuroscience 2019 Outram S