Marsha Treadwell, PhD
Professor
Pediatrics
School of Medicine

I also serve as Regional Director for the Pacific Sickle Cell Regional Collaborative. I am a licensed clinical psychologist and my research and clinical work has focused on improving quality of life, quality of care, patient reported outcomes and transition from pediatric to adult care for individuals living with sickle cell disease and their families. I lead an internationally recognized program of research focused on how social drivers, psychological and behavioral factors, and organizational structures and processes impact the health and well-being of populations affected by sickle cell disease.

• The effect of an adapted digital mental health intervention for sickle cell disease on engagement: a pilot randomized controlled trial.
  BMC Digital Health 2023 Emily V. Nardo, Ektha Parchuri, Julia A. O’Brien, Lori Crosby, Jerlym Porter, Tonya Palermo, Cara Nikolajski, Marsha Treadwell, Cheryl A. Hillery, Eva Szigethy, Charles R. Jonassaint
• Grndad and Disease Modifying Therapy (DMT): Shifts in Dmt Are Seen at the Adolescent/Young Adult Transition in Sickle Cell Disease in a Multi-Site Prospective Registry.
  Blood 2023 Sophie Lanzkron, Deepa Manwani, Julie Kanter, Arpan A Sinha, Robin E. Miller, Robert Cronin, Seethal A Jacob, James Harper, Alan Randall Anderson, Marsha Treadwell, Amma T. Owusu-Ansah, Beng R. Fuh, …
• Impact of an Individualized Pain Plan (IPP) for Adults with Sickle Cell Disease Experiencing a Vaso-Occlusive Episode (VOE) on Patient Satisfaction and ED Provider Confidence in Treating Pain.
  Blood 2023 Rita V Masese, Lauren Siewny, Siera Gollan, Jeffrey A. Glassberg, Victor R. Gordeuk, Jane S Hankins, Cathy Melvin, Liliana Preiss, Paula Jean Tanabe, Marsha Treadwell, Allison A. King
• Optimizing Acute Sickle Cell Care at Community Health Partners Medical Center.
  Blood 2023 Jeffrey T Means, Nicole Palmer, Jeffrey Uller, Daniel Park, Andrew Hwang, Brian Chinnock, Marsha Treadwell, Patrick Macmillan, Haifaa Abdulhaq, Wesley Viau, Nivedana Ravi, Sani Bukari
• Role of Menstrual Bleeding Assessments in Sickle Cell Clinics in Improving Quality of Care for Women- a Multicenter Approach.
  Blood 2023 Neha Bhasin, Gillian Rush, John J Strouse, Kim Moffatt-Bazile, Rania E Mohamed, Seethal A Jacob, Bindu Kanathezhath Sathi, Gayle M Smink, Corinna L. Schultz, Nicole DiVirgilio, Elliott P. Vichinsky, …
• Looking ahead: ethical and social challenges of somatic gene therapy for sickle cell disease in Africa.
  Gene therapy 2023 Munung NS, Nnodu OE, Moru PO, Kalu AA, Impouma B, Treadwell MJ, Wonkam A
• "The project did not come to us with a solution": Perspectives of research teams on implementing a study about electronic health record-embedded individualized pain plans for emergency department treatment of vaso-occlusive episodes in adults with sickle cell disease.
  BMC health services research 2023 Baumann AA, Hankins JS, Hsu LL, Gibson RW, Richardson LD, Treadwell M, Glassberg JA, Bourne S, Luo L, Masese RV, Demartino T, Nocek J, Taaffe E, Gollan S, Ruiz OO, Nwosu C, Qashou N, James AS, Tanabe …
• Caught between pity, explicit bias, and discrimination: a qualitative study on the impact of stigma on the quality of life of persons living with sickle cell disease in three African countries.
  Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 2023 Munung NS, Treadwell M, Kamga KK, Dennis-Antwi J, Anie K, Bukini D, Makani J, Wonkam A
• Burden of Aging: Health Outcomes Among Adolescents and Young Adults With Sickle Cell Disease.
  HemaSphere 2023 Howell KE, Pugh N, Longoria J, Shah N, Kutlar A, Gordeuk VR, King AA, Glassberg J, Kayle M, Melvin C, Treadwell M, Hankins JS, Porter JS
• Mental health and psychological resilience in sickle cell disease.
  The Lancet. Haematology 2023 Treadwell MJ
• The Effect of an Adapted Digital Mental Health Intervention for Sickle Cell Disease on Engagement: A Pilot Randomized Controlled Trial.
  Research square 2023 Parchuri E, Nardo E, O'Brien J, Crosby L, Porter J, Palermo T, Nikolajski CE, Treadwell M, Hillery C, Szigethy E, Jonassaint C
• Examining Mental Health, Education, Employment, and Pain in Sickle Cell Disease.
  JAMA network open 2023 Harris KM, Preiss L, Varughese T, Bauer A, Calhoun CL, Treadwell M, Masese R, Hankins JS, Hussain FA, Glassberg J, Melvin CL, Gibson R, King AA, Sickle Cell Disease Implementation Consortium
• CureSCi Metadata Catalog-Making sickle cell studies findable.
  PloS one 2022 Pan H, Ives C, Mandal M, Qin Y, Hendershot T, Popovic J, Brambilla D, Stratford J, Treadwell M, Wu X, Kroner B
• Assent, parental consent and reconsent for health research in Africa: thematic analysis of national guidelines and lessons from the SickleInAfrica registry.
  BMC medical ethics 2022 Munung NS, Nembaware V, Osei-Tutu L, Treadwell M, Chide OE, Bukini D, Tutuba H, SickleInAfrica ELSI WG, Wonkam A
• Quality of Life in Sickle Cell Disease: What Matters.
  Hematology/oncology clinics of North America 2022 Treadwell MJ, Anie KA
• A New Phen X Collection: Sickle Cell Disease Psychosocial and Social Determinants of Health Protocols.
  Blood 2022 Lori E. Crosby, Allison A. King, Jerlym S. Porter, Sherif M. Badawy, Dominique Bulgin, Steven J. Hardy, Staci D. Arnold, Desiree Williford, Marsha Treadwell, Wayne Huggins, Cataia Ives, Marian …
• Baseline Patient and Provider Reports of Quality of Care and Confidence Providing ED Management of Vaso-Occlusive Episodes.
  Blood 2022 Paula Tanabe, Jane Hankins, Robert Gibson, Victor R. Gordeuk, Cathy L Melvin, Liliana Preiss, Lauren Siewny, Lynne Richardson, Marsha Treadwell, Allison A. King
• Mortality in Adults with Sickle Cell Disease: Results from the Sickle Cell Disease Implementation Consortium (SCDIC) Registry.
  Blood 2022 Franklin Njoku, Norma Pugh, Marsha Treadwell, Jeffrey A. Glassberg, Abdullah Kutlar, Robert Gibson, Nirmish Shah, Victor R. Gordeuk, Lewis L. Hsu, Jane Hankins, Allison A. King, Julie Kanter
• Optimizing Shared Decision Making about Hydroxyurea in Young Children with Sickle Cell Anemia.
  Blood 2022 Aimee K. Hildenbrand, Allison A. King, Constance A Mara, Yolanda Johnson, Lisa M Shook, Catharine Whitacre, Maria T Britto, Charles T. Quinn, William Brinkman, Rogelle Hackworth, Jean L. Raphael, …
• What does it mean to be affiliated with care?: Delphi consensus on the definition of "unaffiliation" and "specialist" in sickle cell disease.
  PloS one 2022 Lamont AE, Hsu LL, Jacobs S, Gibson R, Treadwell M, Chen Y, Lottenberg R, Axelrod K, Varughese T, Melvin C, Smith S, Chukwudozie IB, Kanter J, Sickle Cell Disease Implementation Consortium
• Barriers to hydroxyurea use from the perspectives of providers, individuals with sickle cell disease, and families: Report from a U.S. regional collaborative.
  Frontiers in genetics 2022 Treadwell MJ, Du L, Bhasin N, Marsh AM, Wun T, Bender MA, Wong TE, Crook N, Chung JH, Norman S, Camilo N, Cavazos J, Nugent D
• Transitioning Adolescents With Sickle Cell Disease From Pediatric to Adult Care: Results From a New Survey of Health Care Professionals.
  Journal of pediatric hematology/oncology 2022 Shah NR, Treadwell MJ, Vichinsky E
• An evaluation of patient-reported outcomes in sickle cell disease within a conceptual model.
  Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 2022 Treadwell MJ, Mushiana S, Badawy SM, Preiss L, King AA, Kroner B, Chen Y, Glassberg J, Gordeuk V, Shah N, Snyder A, Wun T, Sickle Cell Disease Implementation Consortium (SCDIC)
• Perspectives of individuals with sickle cell disease on barriers to care.
  PloS one 2022 Phillips S, Chen Y, Masese R, Noisette L, Jordan K, Jacobs S, Hsu LL, Melvin CL, Treadwell M, Shah N, Tanabe P, Kanter J
• Pregnancy outcomes with hydroxyurea use in women with sickle cell disease.
  American journal of hematology 2022 Kroner BL, Hankins JS, Pugh N, Kutlar A, King AA, Shah NR, Kanter J, Glassberg J, Treadwell M, Gordeuk VR, Sickle Cell Disease Implementation Consortium
• Identifying barriers to evidence-based care for sickle cell disease: results from the Sickle Cell Disease Implementation Consortium cross-sectional survey of healthcare providers in the USA.
  BMJ open 2021 Smeltzer MP, Howell KE, Treadwell M, Preiss L, King AA, Glassberg JA, Tanabe P, Badawy SM, DiMartino L, Gibson R, Kanter J, Klesges LM, Hankins JS, Sickle Cell Disease Implementation Consortium
• Early Evaluation of the Use of Crizanlizumab in Sickle Cell Disease: A National Alliance of Sickle Cell Centers Study.
  Blood 2021 Julie Kanter, Gerhard Hellemann, Alice J. Cohen, Deepa Manwani, Modupe Idowu, Stephanie Guarino, Sana Saif Ur Rehman, Marsha Treadwell, E. Leila Jerome Clay, Amma Owusu-Ansah, Jane A. Little, Payal …
• Improving Completion Rates of Transcranial Doppler Ultrasounds in Children with Sickle Cell Disease Using Quality Improvement Efforts: In-Clinic Vs. Population-Based Assessments.
  Blood 2021 Madhav Vissa, Marsha Treadwell, Naomi Bardach
• Sex-based differences in the manifestations and complications of sickle cell disease: Report from the Sickle Cell Disease Implementation Consortium.
  PloS one 2021 Masese RV, Bulgin D, Knisely MR, Preiss L, Stevenson E, Hankins JS, Treadwell MJ, King AA, Gordeuk VR, Kanter J, Gibson R, Glassberg JA, Tanabe P, Shah N, Sickle Cell Disease Implementation Consortium
• Patient-reported neurocognitive symptoms influence instrumental activities of daily living in sickle cell disease.
  American journal of hematology 2021 Longoria JN, Pugh NL, Gordeuk V, Hsu LL, Treadwell M, King AA, Gibson R, Kayle M, Crego N, Glassberg J, Melvin CL, Hankins JS, Porter J
• Engaging Caregivers and Providers of Children With Sickle Cell Anemia in Shared Decision Making for Hydroxyurea: Protocol for a Multicenter Randomized Controlled Trial.
  JMIR research protocols 2021 Hood AM, Strong H, Nwankwo C, Johnson Y, Peugh J, Mara CA, Shook LM, Brinkman WB, Real FJ, Klein MD, Hackworth R, Badawy SM, Thompson AA, Raphael JL, Yates AM, Smith-Whitley K, King AA, Calhoun C, …
• Electronic Health Record-Embedded Individualized Pain Plans for Emergency Department Treatment of Vaso-occlusive Episodes in Adults With Sickle Cell Disease: Protocol for a Preimplementation and Postimplementation Study.
  JMIR research protocols 2021 Luo L, King AA, Carroll Y, Baumann AA, Brambilla D, Carpenter CR, Colla J, Gibson RW, Gollan S, Hall G, Klesges L, Kutlar A, Lyon M, Melvin CL, Norell S, Mueller M, Potter MB, Richesson R, Richardson …
• Improving Preventive Care for Children With Sickle Cell Anemia: A Quality Improvement Initiative.
  Pediatric quality & safety 2020 Cabana MD, Marsh A, Treadwell MJ, Stemmler P, Rowland M, Bender MA, Bhasin N, Chung JH, Hassell K, Abdul Rashid NFN, Wong TE, Bardach NS
• Association between hospital admissions and healthcare provider communication for individuals with sickle cell disease.
  Hematology (Amsterdam, Netherlands) 2020 Cronin RM, Yang M, Hankins JS, Byrd J, Pernell BM, Kassim A, Adams-Graves P, Thompson AA, Kalinyak K, DeBaun M, Treadwell M
• Hydroxyurea Use and Outcomes of Pregnancy in Sickle Cell Disease.
  Blood 2020 Victor R. Gordeuk, Barbara Kroner, Norma Pugh, Jane S. Hankins, Abdullah Kutlar, Allison A. King, Nirmish Shah, Julie Kanter, Jeffrey Glassberg, Marsha Treadwell
• Predictors of Maternal Morbidity Among Participants Enrolled in the Sickle Cell Disease Implementation Consortium Registry.
  Blood 2020 Rita V Masese, Dominique Bulgin, Liliana Preiss, Mitchell Knisely, Eleanor Stevenson, Jane S. Hankins, Marsha Treadwell, Allison A. King, Victor R. Gordeuk, Julie Kanter, Robert Gibson, Jeffrey A. …
• Sex Based Differences in Sickle Cell Disease.
  Blood 2020 Rita V Masese, Dominique Bulgin, Mitchell Knisely, Liliana Preiss, Eleanor Stevenson, Jane S. Hankins, Marsha Treadwell, Allison A. King, Victor R. Gordeuk, Julie Kanter, Robert Gibson, Jeffrey A. …
• Intentional and unintentional nonadherence to hydroxyurea among people with sickle cell disease: a qualitative study.
  Blood advances 2020 Hodges JR, Phillips SM, Norell S, Nwosu C, Khan H, Luo L, Badawy SM, King A, Tanabe P, Treadwell M, Rojas Smith L, Calhoun C, Hankins JS, Porter J
• Building access to care in adult sickle cell disease: defining models of care, essential components, and economic aspects.
  Blood advances 2020 Kanter J, Smith WR, Desai PC, Treadwell M, Andemariam B, Little J, Nugent D, Claster S, Manwani DG, Baker J, Strouse JJ, Osunkwo I, Stewart RW, King A, Shook LM, Roberts JD, Lanzkron S
• Integration of Mobile Health Into Sickle Cell Disease Care to Increase Hydroxyurea Utilization: Protocol for an Efficacy and Implementation Study.
  JMIR research protocols 2020 Hankins JS, Shah N, DiMartino L, Brambilla D, Fernandez ME, Gibson RW, Gordeuk VR, Lottenberg R, Kutlar A, Melvin C, Simon J, Wun T, Treadwell M, Calhoun C, Baumann A, Potter MB, Klesges L, Bosworth H…
• A National Measurement Framework to Assess and Improve Sickle Cell Care in 4 US Regions.
  Public health reports (Washington, D.C. : 1974) 2020 Faro EZ, Shook L, Treadwell MJ, King AA, Whiteman LN, Ivy ED, Hulihan M, Kavanagh PL, Selk S, Oyeku S, Berns SD
• Patient-reported outcomes in sickle cell disease and association with clinical and psychosocial factors: Report from the sickle cell disease implementation consortium.
  American journal of hematology 2020 Knisely MR, Pugh N, Kroner B, Masese R, Gordeuk V, King AA, Smith SM, Gurney JG, Adams R, Wun T, Snyder A, Glassberg J, Shah N, Treadwell M, Sickle Cell Disease Implementation Consortium
• Perceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of Care.
  JAMA network open 2020 Kanter J, Gibson R, Lawrence RH, Smeltzer MP, Pugh NL, Glassberg J, Masese RV, King AA, Calhoun C, Hankins JS, Treadwell M
• Paediatric to adult transition care for patients with sickle cell disease: a global perspective.
  The Lancet. Haematology 2020 Inusa BPD, Stewart CE, Mathurin-Charles S, Porter J, Hsu LL, Atoyebi W, De Montalembert M, Diaku-Akinwumi I, Akinola NO, Andemariam B, Abboud MR, Treadwell M
• Impact of Medicaid expansion on access and healthcare among individuals with sickle cell disease.
  Pediatric blood & cancer 2020 Kayle M, Valle J, Paulukonis S, Holl JL, Tanabe P, French DD, Garg R, Liem RI, Badawy SM, Treadwell MJ
• Understanding sickle cell disease: impact of surveillance and gaps in knowledge.
  Blood advances 2020 Kaur M, Brown M, Love TW, Thompson A, Treadwell M, Smith-Whitley K
• Chapter 8 Pediatric sickle cell disease.
  2020 Katherine M. Kidwell, Marsha J. Treadwell, Lori E. Crosby
• Social and Psychological Factors Associated With Health Care Transition for Young Adults Living With Sickle Cell Disease.
  Journal of transcultural nursing : official journal of the Transcultural Nursing Society 2019 Clayton-Jones D, Matthie N, Treadwell M, Field JJ, Mager A, Sawdy R, George Dalmida S, Leonard C, Koch KL, Haglund K
• Risk factors for hospitalizations and readmissions among individuals with sickle cell disease: results of a U.S. survey study.
  Hematology (Amsterdam, Netherlands) 2019 Cronin RM, Hankins JS, Byrd J, Pernell BM, Kassim A, Adams-Graves P, Thompson A, Kalinyak K, DeBaun M, Treadwell M
• A Pilot Adult Sickle Cell Hematology Clinic in California's Inland Empire Improves Patient Outcome.
  Blood 2019 Neha Chiruvolu, Amie Patel, Carolyn Rowley, Marsha J. Treadwell, Elliott P. Vichinsky, Zahra Pakbaz
• Establishing a Multi-Country Sickle Cell Disease Registry in Africa: Ethical Considerations.
  Frontiers in genetics 2019 Munung NS, Nembaware V, de Vries J, Bukini D, Tluway F, Treadwell M, Sangeda RZ, Mazandu G, Jonas M, Paintsil V, Nnodu OE, Balandya E, Makani J, Wonkam A
• Exploring the Role of Shared Decision Making in the Consent Process for Pediatric Genomics Research in Cameroon, Tanzania, and Ghana.
  AJOB empirical bioethics 2019 Bukini D, deVries J, Treadwell M, Anie K, Dennis-Antwi J, Kamga KK, McCurdy S, Ohene-Frempong K, Makani J, Wonkam A
• A STRATEGY FOR THE MEASUREMENT OF SICKLE CELL DISEASE SYMPTOMS FROM THE PATIENT PERSPECTIVE.
  HemaSphere 2019 F. Ojo, L. Litcher-Kelly, I. Mazar, B. Klooster, A. Roeder, E. Chaston, S. Ollis, M. Treadwell, D. Reasner
• Barriers to Pediatric Sickle Cell Disease Guideline Recommendations.
  Global pediatric health 2019 Cabana MD, Kanter J, Marsh AM, Treadwell MJ, Rowland M, Stemmler P, Bardach NS
• Lessons Learned from Building a Pediatric-to-Adult Sickle Cell Transition Program.
  Southern medical journal 2019 Smith WR, Sisler IY, Johnson S, Lipato TJ, Newlin JS, Owens ZS, Morgan AM, Treadwell MJ, Polak K
• Development of a Hydroxyurea Decision Aid for Parents of Children With Sickle Cell Anemia.
  Journal of pediatric hematology/oncology 2019 Crosby LE, Walton A, Shook LM, Ware RE, Treadwell M, Saving KL, Britto M, Peugh J, McTate E, Oyeku S, Nwankwo C, Brinkman WB
• Measurement of Sickle Cell Disease Symptoms from the Patient Perspective: Considerations for Clinical Trials.
  Blood 2018 Funke Ojo, Leighann Litcher-Kelly, Iyar Mazar, Brittany Klooster, Sarah Ollis, Emily Chaston, Adam Roeder, Marsha J. Treadwell, David Reasner
• Pediatric residents' perceived barriers to opioid use in sickle cell disease pain management.
  Pediatric blood & cancer 2018 Fearon A, Marsh A, Kim J, Treadwell M
• Virtual reality as complementary pain therapy in hospitalized patients with sickle cell disease.
  Pediatric blood & cancer 2018 Agrawal AK, Robertson S, Litwin L, Tringale E, Treadwell M, Hoppe C, Marsh A
• The sickle cell disease implementation consortium: Translating evidence-based guidelines into practice for sickle cell disease.
  American journal of hematology 2018 DiMartino LD, Baumann AA, Hsu LL, Kanter J, Gordeuk VR, Glassberg J, Treadwell MJ, Melvin CL, Telfair J, Klesges LM, King A, Wun T, Shah N, Gibson RW, Hankins JS, Sickle Cell Disease Implementation …
• Relation Between Religious Perspectives and Views on Sickle Cell Disease Research and Associated Public Health Interventions in Ghana.
  Journal of genetic counseling 2018 Dennis-Antwi JA, Ohene-Frempong K, Anie KA, Dzikunu H, Agyare VA, Boadu RO, Antwi JS, Asafo MK, Anim-Boamah O, Asubonteng AK, Agyei S, Wonkam A, Treadwell MJ
• Modifying factors of the health belief model associated with missed clinic appointments among individuals with sickle cell disease.
  Hematology (Amsterdam, Netherlands) 2018 Cronin RM, Hankins JS, Byrd J, Pernell BM, Kassim A, Adams-Graves P, Thompson AA, Kalinyak K, DeBaun MR, Treadwell M
• Sensitivity of alternative measures of functioning and wellbeing for adults with sickle cell disease: comparison of PROMIS® to ASCQ-Me℠.
  Health and quality of life outcomes 2017 Keller S, Yang M, Treadwell MJ, Hassell KL
• Stakeholder Perspectives on Public Health Genomics Applications for Sickle Cell Disease: A Methodology for a Human Heredity and Health in Africa (H3Africa) Qualitative Research Study.
  OMICS A Journal of Integrative Biology 2017 Marsha J. Treadwell, Julie Makani, Kwaku Ohene-Frempong, Solomon Ofori-Acquah, Sheryl McCurdy, Jantina de Vries, Daima Bukini, Jemima Dennis-Antwi, Karen Kengne Kamga, Columba Mbekenga, Edmond Tingang…
• Impact of Elosulfase Alfa on Pain in Patients with Morquio A Syndrome over 52 Weeks.
  Journal of Inborn Errors of Metabolism and Screening 2017 Marsha Treadwell, Paul R. Harmatz, Barbara K. Burton, John J. Mitchell, Nicole Muschol, Simon A. Jones, Gregory M. Pastores, Heather A. Lau, Rebecca Sparkes, V. Reid Sutton, Bianca Meesen, Christine A…
• Long-Term Pulmonary Function and Quality of Life in Children After Acute Respiratory Distress Syndrome: A Feasibility Investigation.
  Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies 2017 Ward SL, Turpin A, Spicer AC, Treadwell MJ, Church GD, Flori HR
• Emergency department utilization by Californians with sickle cell disease, 2005-2014.
  Pediatric blood & cancer 2016 Paulukonis ST, Feuchtbaum LB, Coates TD, Neumayr LD, Treadwell MJ, Vichinsky EP, Hulihan MM
• Mortality Among Women with Sickle Cell Disease Admitted for Delivery, California 2004-2014.
  Blood 2016 Faith S. Raider, Susan Paulukonis, Ward Hagar, Marsha J Treadwell, Mary Hulihan
• Self-efficacy and readiness for transition from pediatric to adult care in sickle cell disease.
  International journal of adolescent medicine and health 2016 Treadwell M, Johnson S, Sisler I, Bitsko M, Gildengorin G, Medina R, Barreda F, Major K, Telfair J, Smith WR
• Impact of elosulfase alfa in patients with morquio A syndrome who have limited ambulation: An open-label, phase 2 study.
  American journal of medical genetics. Part A 2016 Harmatz PR, Mengel E, Geberhiwot T, Muschol N, Hendriksz CJ, Burton BK, Jameson E, Berger KI, Jester A, Treadwell M, Sisic Z, Decker C
• 278 Emergency Department Utilization by Californians With Sickle Cell Disease, 2005-2014.
  Annals of Emergency Medicine 2016 S. Paulukonis, E. Vichinsky, L. Neumayr, M. Treadwell, T. Coates, L. Feuchtbaum, M. Hulihan
• Barriers and facilitators to research participation among adults, and parents of children with sickle cell disease: A trans-regional survey.
  American journal of hematology 2016 Cronin RM, Hankins JS, Adams-Graves P, Thompson AA, Kalinyak K, Byrd J, McClain B, Kassim A, DeBaun M, Treadwell M
• Quality of care in sickle cell disease: Cross-sectional study and development of a measure for adults reporting on ambulatory and emergency department care.
  Medicine 2016 Evensen CT, Treadwell MJ, Keller S, Levine R, Hassell KL, Werner EM, Smith WR
• Development of a sickle cell disease readiness for transition assessment.
  International journal of adolescent medicine and health 2016 Treadwell M, Johnson S, Sisler I, Bitsko M, Gildengorin G, Medina R, Barreda F, Major K, Telfair J, Smith WR
• Community engagement to inform the development of a sickle cell counselor training and certification program in Ghana.
  Journal of community genetics 2016 Anie KA, Treadwell MJ, Grant AM, Dennis-Antwi JA, Asafo MK, Lamptey ME, Ojodu J, Yusuf C, Otaigbe A, Ohene-Frempong K
• Proceedings of a Sickle Cell Disease Ontology workshop - Towards the first comprehensive ontology for Sickle Cell Disease.
  Applied & translational genomics 2016 Mulder N, Nembaware V, Adekile A, Anie KA, Inusa B, Brown B, Campbell A, Chinenere F, Chunda-Liyoka C, Derebail VK, Geard A, Ghedira K, Hamilton CM, Hanchard NA, Haendel M, Huggins W, Ibrahim M, Jupp …
• Global Challenges in Transition Care: One Program Models a Path for Young Adults with Sickle Cell Disease.
  Pediatrics 2016 Julia A. Marino, Marsha Treadwell, Kimberly Major
• Impact of elosulfase alfa in patients with Morquio syndrome type A who have limited ambulation: An open-label, phase 2 study.
  Molecular Genetics and Metabolism 2016 Paul R. Harmatz, Andrea Jester, Eugen Mengel, Marsha Treadwell, Barbara K. Burton, Kenneth I. Berger, Christian J. Hendriksz, Tarekegn Geberhiwot, Zlatko Sisic, Celeste Decker
• Teaching About Genetics and Sickle Cell Disease In Fifth Grade.
  Journal of the National Medical Association 2015 Day LL, Murray E, Treadwell MJ, Lubin BH
• Safety and physiological effects of two different doses of elosulfase alfa in patients with morquio a syndrome: A randomized, double-blind, pilot study.
  American journal of medical genetics. Part A 2015 Burton BK, Berger KI, Lewis GD, Tarnopolsky M, Treadwell M, Mitchell JJ, Muschol N, Jones SA, Sutton VR, Pastores GM, Lau H, Sparkes R, Genter F, Shaywitz AJ, Harmatz P
• Sickle cell disease and H3Africa: enhancing genomic research on cardiovascular diseases in African patients.
  Cardiovascular journal of Africa 2015 Wonkam A, Makani J, Ofori-Aquah S, Nnodu OE, Treadwell M, Royal C, Ohene-Frempong K, Members of the H3Africa Consortium
• Impact of elosulfase alfa on pain in patients with Morquio syndrome type A.
  Molecular Genetics and Metabolism 2015 Paul Harmatz, M. Treadwell, Barbara K. Burton, John Mitchell, N. Muschol, Simon Jones, Gregory Pastores, Heather Lau, R. Sparkes, V.R. Sutton, F. Genter, C. Haller, A. Shaywitz
• Adult sickle cell quality-of-life measurement information system (ASCQ-Me): conceptual model based on review of the literature and formative research.
  The Clinical journal of pain 2014 Treadwell MJ, Hassell K, Levine R, Keller S
• Using formative research to develop a counselor training program for newborn screening in Ghana.
  Journal of genetic counseling 2014 Treadwell MJ, Anie KA, Grant AM, Ofori-Acquah SF, Ohene-Frempong K
• Population based surveillance in sickle cell disease: methods, findings and implications from the California registry and surveillance system in hemoglobinopathies project (RuSH).
  Pediatric blood & cancer 2014 Paulukonis ST, Harris WT, Coates TD, Neumayr L, Treadwell M, Vichinsky E, Feuchtbaum LB
• Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks.
  Health and quality of life outcomes 2014 Keller SD, Yang M, Treadwell MJ, Werner EM, Hassell KL
• Research capacity. Enabling the genomic revolution in Africa.
  Science (New York, N.Y.) 2014 H3Africa Consortium, Rotimi C, Abayomi A, Abimiku A, Adabayeri VM, Adebamowo C, Adebiyi E, Ademola AD, Adeyemo A, Adu D, Affolabi D, Agongo G, Ajayi S, Akarolo-Anthony S, Akinyemi R, Akpalu A, Alberts…
• A Quality Improvement Initiative to Improve Emergency Department Care for Pediatric Patients with Sickle Cell Disease.
  Journal of clinical outcomes management : JCOM 2014 Treadwell MJ, Bell M, Leibovich SA, Barreda F, Marsh A, Gildengorin G, Morris CR
• Quality Improvement Goals for Sickle Cell Disease Pain Management in an Urban Pediatric Emergency Department: We Can Do Better!.
  Blood 2012 Claudia R. Morris, Fernando Barreda, Sara A. Leibovich, Mary Rutherford, Augusta Saulys, Melinee Stewart, Lisa Lavrisha, Elliott Vichinsky, Michael Bell, Marsha J Treadwell
• A biopsychosocial-spiritual model of chronic pain in adults with sickle cell disease.
  Pain management nursing : official journal of the American Society of Pain Management Nurses 2011 Taylor LEV, Stotts NA, Humphreys J, Treadwell MJ, Miaskowski C
• Screening U.S. college athletes for their sickle cell disease carrier status.
  American journal of preventive medicine 2011 Jordan LB, Smith-Whitley K, Treadwell MJ, Telfair J, Grant AM, Ohene-Frempong K
• Mental Health Symptoms, Quality of Life and Barriers to Accessing Health Care in Sickle Cell Disease.
  Blood 2011 Marsha J Treadwell, Fernando Barreda, Kimberly Major, Valentino Walker, Wanda Payton, Kimpreet Kaur, Elliott Vichinsky
• Autonomic nervous system reactivity: children with and without sickle cell disease.
  Nursing research 2011 Treadwell MJ, Alkon A, Styles L, Boyce WT
• The mediating effects of family functioning on psychosocial outcomes in healthy siblings of children with sickle cell disease.
  Pediatric blood & cancer 2011 Gold JI, Treadwell M, Weissman L, Vichinsky E
• Transition from pediatric to adult care in sickle cell disease: establishing evidence-based practice and directions for research.
  American journal of hematology 2011 Treadwell M, Telfair J, Gibson RW, Johnson S, Osunkwo I
• Chart Card: feasibility of a tool for improving emergency department care in sickle cell disease.
  Journal of the National Medical Association 2010 Neumayr L, Pringle S, Giles S, Quirolo KC, Paulukonis S, Vichinsky EP, Treadwell MJ
• Education and employment status of children and adults with thalassemia in North America.
  Pediatric blood & cancer 2010 Pakbaz Z, Treadwell M, Kim HY, Trachtenberg F, Parmar N, Kwiatkowski JL, Cunningham MJ, Martin M, Sweeters N, Neufeld EJ, Giardina PJ, Olivieri N, Yamashita RC, Vichinsky E
• A review of the literature on the multiple dimensions of chronic pain in adults with sickle cell disease.
  Journal of pain and symptom management 2010 Taylor LE, Stotts NA, Humphreys J, Treadwell MJ, Miaskowski C
• Stress reactivity as a moderator of family stress, physical and mental health, and functional impairment for children with sickle cell disease.
  Journal of developmental and behavioral pediatrics : JDBP 2010 Treadwell MJ, Alkon A, Quirolo KC, Boyce WT
• Psychosocial and behavioral outcomes in children with sickle cell disease and their healthy siblings.
  Journal of behavioral medicine 2008 Gold JI, Mahrer NE, Treadwell M, Weissman L, Vichinsky E
• Detection and assessment of stroke in patients with sickle cell disease: neuropsychological functioning and magnetic resonance imaging.
  Pediatric hematology and oncology 2008 Gold JI, Johnson CB, Treadwell MJ, Hans N, Vichinsky E
• An expanded Transactional Stress and Coping Model for siblings of children with sickle cell disease: family functioning and sibling coping, self-efficacy and perceived social support.
  Child: care, health and development 2008 Gold JI, Treadwell M, Weissman L, Vichinsky E
• Quantification of analgesic use in children with sickle cell disease.
  The Clinical journal of pain 2007 Jacob E, Miaskowski C, Savedra M, Beyer JE, Treadwell M, Styles L
• Sickle Cell Disease Health-Related Quality of Life Questionnaire Project.
  Blood 2006 Ellen M. Werner, Marsha Treadwell, Kathryn Hassell, San Keller, Roger Levine
• Using qualitative and quantitative strategies to evaluate knowledge and perceptions about sickle cell disease and sickle cell trait.
  Journal of the National Medical Association 2006 Treadwell MJ, McClough L, Vichinsky E
• Changes in sleep, food intake, and activity levels during acute painful episodes in children with sickle cell disease.
  Journal of pediatric nursing 2006 Jacob E, Miaskowski C, Savedra M, Beyer JE, Treadwell M, Styles L
• Autonomic reactivity and clinical severity in children with sickle cell disease.
  Clinical autonomic research : official journal of the Clinical Autonomic Research Society 2005 Pearson SR, Alkon A, Treadwell M, Wolff B, Quirolo K, Boyce WT
• Quality of Life (QOL) in Sickle Cell Disease (SCD).
  Blood 2005 Zahra Pakbaz, Leah Richards, Marsha Treadwell, Ekua Hackney-Stephens, Keith Quirolo, Elliott Vichinsky
• Barriers to adherence of deferoxamine usage in sickle cell disease.
  Pediatric blood & cancer 2005 Treadwell MJ, Law AW, Sung J, Hackney-Stephens E, Quirolo K, Murray E, Glendenning GA, Vichinsky E
• Trends in complete blood count values during acute painful episodes in children with sickle cell disease.
  Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses 2005 Jacob E, Miaskowski C, Savedra M, Beyer JE, Treadwell M, Styles L
• Are there phases to the vaso-occlusive painful episode in sickle cell disease?
  Journal of pain and symptom management 2005 Jacob E, Beyer JE, Miaskowski C, Savedra M, Treadwell M, Styles L
• A simple model to assess and improve adherence to iron chelation therapy with deferoxamine in patients with thalassemia.
  Annals of the New York Academy of Sciences 2005 Pakbaz Z, Fischer R, Treadwell M, Yamashita R, Fung EB, Calvelli L, Quirolo K, Foote D, Harmatz P, Vichinsky EP
• Quality of life in patients with thalassemia intermedia compared to thalassemia major.
  Annals of the New York Academy of Sciences 2005 Pakbaz Z, Treadwell M, Yamashita R, Quirolo K, Foote D, Quill L, Singer T, Vichinsky EP
• Assessing Compliance to Iron Chelation Therapy in Patients with Thalassemia.
  Blood 2004 Zahra Pakbaz, Roland Fischer, Richrd Gamino, Keith Quirolo, Robert Yamashita, Marsha Treadwell, Ellen B. Fung, Paul Harmatz, Elliott Vichinsky
• Barriers to Deferoxamine Adherence for Adults with Sickle Cell Disease.
  Blood 2004 Marsha Treadwell, Jennifer Sung, Eileen Murray, Robert Hagar, Kimberly Major, Ekua Hackney-Stephens, Alastair Glendenning, Christy Hoehner, Elliott P. Vichinsky
• Quality of Life in Patients with Thalassemia.
  Blood 2004 Zahra Pakbaz, Marsha Treadwell, Robert Yamashita2, Drucilla Foote, Elliott Vichinsky
• Pain in children Are there phases to the vaso-occlusive episode in children with sickle cell disease.
  Journal of Pain 2004 E. Jacob, C. Miaskowski, M. Savedra, J. Beyer, M. Treadwell, L. Styles
• Management of vaso-occlusive pain in children with sickle cell disease.
  Journal of pediatric hematology/oncology 2003 Jacob E, Miaskowski C, Savedra M, Beyer JE, Treadwell M, Styles L
• Changes in intensity, location, and quality of vaso-occlusive pain in children with sickle cell disease.
  Pain 2003 Jacob E, Miaskowski C, Savedra M, Beyer JE, Treadwell M, Styles L
• Assessment of sickle cell pain in children and young adults using the adolescent pediatric pain tool.
  Journal of pain and symptom management 2002 Franck LS, Treadwell M, Jacob E, Vichinsky E
• Using quality improvement strategies to enhance pediatric pain assessment.
  International journal for quality in health care : journal of the International Society for Quality in Health Care 2002 Treadwell MJ, Franck LS, Vichinsky E
• Improving adherence with deferoxamine regimens for patients receiving chronic transfusion therapy.
  Seminars in Hematology 2001 Marsha J Treadwell, Lina Weissman
• Improving adherence with deferoxamine regimens for patients receiving chronic transfusion therapy.
  Seminars in Hematology 2001 Marsha J. Treadwell, Lina Weissman
• Comparing Children with Sickle Cell Disease and Their Healthy Siblings on Measures of Coping, Self-Efficacy, Social Support, and Behavioral Problems,.
  Journal of Developmental and Behavioral Pediatrics 1999 J. I. Gold, M. Treadwell, L. Weissman, E. Vichinsky
• Practice guidelines for the assessment of children with sickle cell pain.
  Journal of the Society of Pediatric Nurses : JSPN 1999 Beyer JE, Platt AF, Kinney TR, Treadwell M
• Approaches to working with adult thalassemia patients in pediatric settings.
  Annals of the New York Academy of Sciences 1998 Weissman L, Treadwell M, Foote D, Heer N, Vichinsky EP
• #652 Evaluation of home desferal care in transfusion dependent children with thalassemia and sickle cell disease (SCD).
  Journal of Pediatric Hematology/Oncology 1996 L. Weissman, M. Treadwell, E. Vichinsky