Julia Brown, PhD
Assistant Professor
Humanities & Social Sciences
School of Medicine
Dr. Julia Brown is an anthropologist and bioethicist who examines lived experiences and social value-making around controversial biotechnologies. She is currently exploring the ethics of prenatal gene technologies, including the emergence of prenatal gene editing. She is author of The Clozapine Clinic: Health Agency in High-Risk conditions (Routledge 2022).
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Dr Brown is the Associate Editor of the journal Culture, Medicine, and Psychiatry, and is an affiliate of the UC Berkeley Kavli Center for Ethics, Science, and the Public.
Education & Training
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- PhD Anthropology Australian National University 2018
- BSc/BA (Hons1) Psychology, Sociology, Anthropology Australian National University 2012
Websites
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- @@juliaehbrown on Twitter (twitter.com)
Grants and Projects
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- The Emergence of Prenatal Gene Therapy: An “Embedded Ethics” Ethnography investigating Clinical, Scientific and Societal Values, NIH/NHGRI, 2022-2027
- Machine Learning for interpreting rare variation in comprehensive newborn screening and pharmacogenetics, Chan Zuckerberg Biohub Intercampus Research Award, 2020-2022
Publications (28)
Top publication keywords:
ClozapineAnthropology, CulturalPrivacyEthics, MedicalLysosomal Storage DiseasesMind-Body Relations, MetaphysicalPractice Patterns, Physicians'SchizophreniaVapingFetusAustraliaSmoking CessationFetal TherapiesAntipsychotic AgentsTrust
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"Let's Just Wait Until She's Born": Temporal Factors That Shape Decision-Making for Prenatal Genomic Sequencing Amongst Families Underrepresented in Genomic Research.
Frontiers in genetics 2022 Brown JEH, Zamora AN, Outram S, Sparks TN, Lianoglou BR, Norstad M, Sahin Hodoglugil NN, Norton ME, Ackerman SL -
Ethical, Legal, and Social Implications of Fetal Gene Therapy.
Clinical obstetrics and gynecology 2021 Brown JEH, Koenig BA -
Experts' Views on Children's Access to Community-Based Therapeutic and Education Services After Genomic Sequencing Results.
Journal of developmental and behavioral pediatrics : JDBP 2024 Outram SM, Brown JEH, Norstad M, Zamora AN, Ackerman SL -
Using visual storytelling to share aggregate findings with families participating in clinical genomics research
Genetics in Medicine Open 2024 Zamora, A.N., Brown, J.E.H., Outram, S. Ackerman, S.L. -
Trust in prenatal exome sequencing for expectant families facing unexplained fetal anomalies.
Prenatal diagnosis 2023 Rothschild HT, Lianoglou BR, Sahin Hodoglugil NN, Tick K, Brown JEH, Sparks TN
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The Next Frontier in Neurology Is In Utero.
JAMA neurology 2023 Russ JB, Brown JEH, Gano D -
On the Social Existence of Mental Health Categories: The Case of Sex Addiction
Social Problems 2023 Brossard, B, Roy, M, Brown, J, Hemmings, B, Larocque, E. -
Experimental Engagements with Ethnography, Moral Agency and Care
Medicine Anthropology Theory 2023 Brown, JEH, D’Arcy, M, Myers, NL, & Ziv, T. -
"I Have Fought for so Many Things": Disadvantaged families' Efforts to Obtain Community-Based Services for Their Child after Genomic Sequencing.
AJOB empirical bioethics 2023 Ackerman SL, Brown JEH, Zamora A, Outram S -
The Stories We Tell or Omit: How Ethnographic (In)Attention can Obscure Structural Racism in the Anthropology of Mental Healthcare
Medicine Anthropology Theory 2023 Brown, JEH. -
Privacy, bias and the clinical use of facial recognition technology: A survey of genetics professionals.
American journal of medical genetics. Part C, Seminars in medical genetics 2023 Aboujaoude E, Light J, Brown JEH, Boscardin WJ, Hallgrímsson B, Klein OD -
Psychiatric genomics, mental health equity, and intersectionality: A framework for research and practice.
Frontiers in psychiatry 2022 Brown JEH, Young JL, Martinez-Martin N -
Functional genomics of OCTN2 variants informs protein-specific variant effect predictor for Carnitine Transporter Deficiency.
Proceedings of the National Academy of Sciences of the United States of America 2022 Koleske ML, McInnes G, Brown JEH, Thomas N, Hutchinson K, Chin MY, Koehl A, Arkin MR, Schlessinger A, Gallagher RC, Song YS, Altman RB, Giacomini KM -
The social value of genomic sequencing for disadvantaged families facing rare disease.
Social science & medicine (1982) 2022 Outram SM, Brown J, Ackerman SL -
Parental Hopes and Understandings of the Value of Prenatal Diagnostic Genomic Sequencing: A Qualitative Analysis.
Frontiers in genetics 2022 Outram SM, Brown JEH, Zamora AN, Sahin-Hodoglugil N, Ackerman SL -
The Clozapine Clinic: Health Agency in High-Risk Conditions
The International Society for Psychological and Social Approaches to Psychosis Book Series 2022 Julia E. H. Brown -
How Ought Decisions That Weigh on Life and Death Be Justly Informed and Governed to Benefit More than the Privileged Few with Access to a Trusted Clinician?
The American journal of bioethics : AJOB 2022 Brown JEH, Koenig BA -
Fetal therapies and trials for lysosomal storage diseases: a survey of attitudes of parents and patients.
Orphanet journal of rare diseases 2022 Schwab ME, Brown JEH, Lianoglou B, Jin C, Conroy PC, Gallagher RC, Harmatz P, MacKenzie TC -
The difficulties of broad data sharing in genomic medicine: Empirical evidence from diverse participants in prenatal and pediatric clinical genomics research.
Genetics in medicine : official journal of the American College of Medical Genetics 2021 Norstad M, Outram S, Brown JEH, Zamora AN, Koenig BA, Risch N, Norton ME, Slavotinek A, Ackerman SL -
AI chatbots cannot replace human interactions in the pursuit of more inclusive mental healthcare
Social Science & Medicine - Mental Health 2021 Brown, JEH. & Halpern, J. -
Opportunities and challenges for the computational interpretation of rare variation in clinically important genes.
American journal of human genetics 2021 McInnes G, Sharo AG, Koleske ML, Brown JEH, Norstad M, Adhikari AN, Wang S, Brenner SE, Halpern J, Koenig BA, Magnus DC, Gallagher RC, Giacomini KM, Altman RB -
The impact of public health palliative care interventions on health system outcomes: A systematic review.
Palliative medicine 2020 Collins A, Brown JEH, Mills J, Philip J -
Relegating Psychosis: Blood Work and "Routine Connection" in the Clozapine Clinic.
Culture, medicine and psychiatry 2020 Brown JEH -
Can e-cigarettes improve the well-being of people with mental health disorders?
The International journal on drug policy 2019 Brown JEH, Gartner C, Carter A -
Raising Health Expectations for Schizophrenia Patients
Anthropology News 2018 Brown, JEH -
'Doing things little by little': Smoking and vaping while being pharmaceutically treated for schizophrenia
Anthropological Forum 2018 Brown, JEH -
Actively Negotiating the Mind-Body Divide: How Clozapine-Treated Schizophrenia Patients Make Health for Themselves.
Culture, medicine and psychiatry 2017 Brown JEH, Dennis S -
Well-being in clozapine-treated schizophrenia patients: The significance of positive symptoms.
Comprehensive psychiatry 2016 Brown JE, Mezquida G, Fernandez-Egea E