Jennifer Merrilees, RN, PhD
Clinical Nurse Specialist 5
Neurology
School of Medicine

Education & Training

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• Diversity, Equity, and Inclusion Champion Training University of California 2019

Publications (47)

Top publication keywords:
LoveSleep DeprivationSelf EfficacyDementiaEmotionsCaregiversFrontotemporal Lobar DegenerationBehaviorBehavioral SymptomsNeurodegenerative DiseasesFrontotemporal DementiaAlzheimer DiseaseFamilyApathyRest

• Long-term effects of collaborative dementia care on quality of life and caregiver well-being.
  Alzheimer's & dementia : the journal of the Alzheimer's Association 2024 Possin KL, Dulaney S, Sideman AB, Wood AJ, Allen IE, Bonasera SJ, Merrilees JJ, Lee K, Chiong W, Braley TL, Hooper S, Kanzawa M, Gearhart R, Medsger H, Harrison KL, Hunt LJ, Kiekhofer RE, Chow C, …
• Perceptions about dementia clinical trials among underrepresented populations: a nationally representative survey of U.S. dementia caregivers.
  Alzheimer's research & therapy 2024 Leggins B, Hart DM, Jackson AJ, Levenson RW, Windon CC, Merrilees J, Chiong W
• Perceptions about dementia clinical trials among underrepresented populations: A nationally representative survey of U.S. dementia caregivers.
  Research square 2024 Leggins B, Hart DM, Jackson AJ, Levenson RW, Windon CC, Merrilees J, Chiong W
• Care Ecosystem Collaborative Model and Health Care Costs in Medicare Beneficiaries With Dementia: A Secondary Analysis of a Randomized Clinical Trial.
  JAMA internal medicine 2023 Guterman EL, Kiekhofer RE, Wood AJ, Allen IE, Kahn JG, Dulaney S, Merrilees JJ, Lee K, Chiong W, Bonasera SJ, Braley TL, Hunt LJ, Harrison KL, Miller BL, Possin KL
• Using personal narrative to promote person-centered values in aging, dementia, and caregiving.
  Frontiers in neurology 2023 Merrilees J, Mayotte C, Vong E, Matice M, Prioleau C

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• "Out of the clear blue sky she tells me she loves me": Connection experiences between caregivers and people with dementia.
  Journal of the American Geriatrics Society 2023 Sideman AB, Merrilees J, Dulaney S, Kiekhofer R, Braley T, Lee K, Chiong W, Miller B, Bonasera SJ, Possin KL
• Outcome measures for Alzheimer's disease: A global inter-societal Delphi consensus.
  Alzheimer's & dementia : the journal of the Alzheimer's Association 2023 Ellison TS, Cappa SF, Garrett D, Georges J, Iwatsubo T, Kramer JH, Lehmann M, Lyketsos C, Maier AB, Merrilees J, Morris JC, Naismith SL, Nobili F, Pahor M, Pond D, Robinson L, Soysal P, Vandenbulcke M…
• Evaluating In-home Assistive Technology for Dementia Caregivers.
  Clinical gerontologist 2023 Levenson RW, Chen KH, Levan DT, Chen EY, Newton SL, Paul D, Yee CI, Brown CL, Merrilees J, Moss D, Wang G
• Effect of collaborative dementia care on potentially inappropriate medication use: Outcomes from the Care Ecosystem randomized clinical trial.
  Alzheimer's & dementia : the journal of the Alzheimer's Association 2022 Liu AK, Possin KL, Cook KM, Lynch S, Dulaney S, Merrilees JJ, Braley T, Kiekhofer RE, Bonasera SJ, Allen IE, Chiong W, Clark AM, Feuer J, Ewalt J, Guterman EL, Gearhart R, Miller BL, Lee KP
• Pronoun Use among Caregivers of People Living with Dementia: Associations with Dementia Severity Using Text Analysis of a Natural Language Sample.
  Dementia and geriatric cognitive disorders extra 2022 Bernstein Sideman A, Wells JL, Merrilees J, Shdo SM, Yee CI, Possin KL, Levenson RW
• Lower activity linkage between caregivers and persons with neurodegenerative diseases is associated with greater caregiver anxiety.
  Psychophysiology 2022 Chen KH, Casey JJ, Connelly DE, Merrilees J, Yang CM, Miller BL, Levenson RW
• Responding to the Needs of Persons Living With Dementia and Their Caregivers During the COVID-19 Pandemic: Lessons From the Care Ecosystem.
  Innovation in aging 2022 Merrilees J, Robinson-Teran J, Allawala M, Dulaney S, Rosenbloom M, Lum HD, Sawyer RJ, Possin KL, Bernstein Sideman A
• "Captive by the Uncertainty"-Experiences with Anticipatory Guidance for People Living with Dementia and Their Caregivers at a Specialty Dementia Clinic.
  Journal of Alzheimer's disease : JAD 2022 Shafir A, Ritchie CS, Garrett SB, Bernstein Sideman A, Naasan G, Merrilees J, Widera E, Flint L, Harrison KL
• The severity of neuropsychiatric symptoms is higher in early-onset than late-onset Alzheimer's disease.
  European journal of neurology 2021 Falgàs N, Allen IE, Spina S, Grant H, Piña Escudero SD, Merrilees J, Gearhart R, Rosen HJ, Kramer JH, Seeley WW, Neylan TC, Miller BL, Rabinovici GD, Grinberg LT, Walsh CM
• Use of Services by People Living Alone With Cognitive Impairment: A Systematic Review.
  Innovation in aging 2021 Rosenwohl-Mack A, Dubbin L, Chodos A, Dulaney S, Fang ML, Merrilees J, Portacolone E
• Emotion Recognition and Reactivity in Persons With Neurodegenerative Disease Are Differentially Associated With Caregiver Health.
  The Gerontologist 2020 Brown CL, Wells JL, Hua AY, Chen KH, Merrilees J, Miller BL, Levenson RW
• Long-term digital device-enabled monitoring of functional status: Implications for management of persons with Alzheimer's disease.
  Alzheimer's & dementia (New York, N. Y.) 2020 Manley NA, Bayen E, Braley TL, Merrilees J, Clark AM, Zylstra B, Schaffer M, Bayen AM, Possin KL, Miller BL, Schenk AK, Bonasera SJ
• Using care navigation to address caregiver burden in dementia: A qualitative case study analysis.
  Alzheimer's & dementia (New York, N. Y.) 2020 Bernstein A, Merrilees J, Dulaney S, Harrison KL, Chiong W, Ong P, Heunis J, Choi J, Walker R, Feuer JE, Lee K, Dohan D, Bonasera SJ, Miller BL, Possin KL
• Effect of Collaborative Dementia Care via Telephone and Internet on Quality of Life, Caregiver Well-being, and Health Care Use: The Care Ecosystem Randomized Clinical Trial.
  JAMA internal medicine 2019 Possin KL, Merrilees JJ, Dulaney S, Bonasera SJ, Chiong W, Lee K, Hooper SM, Allen IE, Braley T, Bernstein A, Rosa TD, Harrison K, Begert-Hellings H, Kornak J, Kahn JG, Naasan G, Lanata S, Clark AM, …
• Association Between Caregiver Depression and Emergency Department Use Among Patients With Dementia.
  JAMA neurology 2019 Guterman EL, Allen IE, Josephson SA, Merrilees JJ, Dulaney S, Chiong W, Lee K, Bonasera SJ, Miller BL, Possin KL
• Genuine Smiles by Patients During Marital Interactions are Associated with Better Caregiver Mental Health.
  The journals of gerontology. Series B, Psychological sciences and social sciences 2019 Lwi SJ, Casey JJ, Verstaen A, Connelly DE, Merrilees J, Levenson RW
• Variations in Costs of a Collaborative Care Model for Dementia.
  Journal of the American Geriatrics Society 2019 Rosa TD, Possin KL, Bernstein A, Merrilees J, Dulaney S, Matuoka J, Lee KP, Chiong W, Bonasera SJ, Harrison KL, Kahn JG
• The costs of dementia subtypes to California Medicare fee-for-service, 2015.
  Alzheimer's & dementia : the journal of the Alzheimer's Association 2019 Chen Y, Wilson L, Kornak J, Dudley RA, Merrilees J, Bonasera SJ, Byrne CM, Lee K, Chiong W, Miller BL, Possin KL
• Randomized controlled trial of a facilitated online positive emotion regulation intervention for dementia caregivers.
  Health psychology : official journal of the Division of Health Psychology, American Psychological Association 2019 Moskowitz JT, Cheung EO, Snowberg KE, Verstaen A, Merrilees J, Salsman JM, Dowling GA
• The Role of Care Navigators Working with People with Dementia and Their Caregivers.
  Journal of Alzheimer's disease : JAD 2019 Bernstein A, Harrison KL, Dulaney S, Merrilees J, Bowhay A, Heunis J, Choi J, Feuer JE, Clark AM, Chiong W, Lee K, Braley TL, Bonasera SJ, Ritchie CS, Dohan D, Miller BL, Possin KL
• The Care Ecosystem: Promoting self-efficacy among dementia family caregivers.
  Dementia (London, England) 2018 Merrilees JJ, Bernstein A, Dulaney S, Heunis J, Walker R, Rah E, Choi J, Gawlas K, Carroll S, Ong P, Feuer J, Braley T, Clark AM, Lee K, Chiong W, Bonasera SJ, Miller BL, Possin KL
• Life Enhancing Activities for Family Caregivers of people with dementia: protocol for a randomized controlled trial of a positive affect skills intervention.
  Open access journal of clinical trials 2018 Verstaen A, Moskowitz JT, Snowberg KE, Merrilees J, Dowling GA
• Empathic Accuracy Deficits in Patients with Neurodegenerative Disease: Association with Caregiver Depression.
  The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry 2017 Brown CL, Lwi SJ, Goodkind MS, Rankin KP, Merrilees J, Miller BL, Levenson RW
• Development of an adaptive, personalized, and scalable dementia care program: Early findings from the Care Ecosystem.
  PLoS medicine 2017 Possin KL, Merrilees J, Bonasera SJ, Bernstein A, Chiong W, Lee K, Wilson L, Hooper SM, Dulaney S, Braley T, Laohavanich S, Feuer JE, Clark AM, Schaffer MW, Schenk AK, Heunis J, Ong P, Cook KM, Bowhay…
• Non-pharmacological Management of Behavioral Symptoms in Frontotemporal and Other Dementias.
  Focus (American Psychiatric Publishing) 2016 Barton C, Ketelle R, Merrilees J, Miller B
• The Impact of Dementia on Family Caregivers: What Is Research Teaching Us?
  Current neurology and neuroscience reports 2016 Merrilees J
• Non-pharmacological Management of Behavioral Symptoms in Frontotemporal and Other Dementias.
  Current neurology and neuroscience reports 2016 Barton C, Ketelle R, Merrilees J, Miller B
• Evaluating and treating neurobehavioral symptoms in professional American football players: Lessons from a case series.
  Neurology. Clinical practice 2015 Gardner RC, Possin KL, Hess CP, Huang EJ, Grinberg LT, Nolan AL, Cohn-Sheehy BI, Ghosh PM, Lanata S, Merrilees J, Kramer JH, Berger MS, Miller BL, Yaffe K, Rabinovici GD
• Criminal behavior in frontotemporal dementia and Alzheimer disease.
  JAMA neurology 2015 Liljegren M, Naasan G, Temlett J, Perry DC, Rankin KP, Merrilees J, Grinberg LT, Seeley WW, Englund E, Miller BL
• Life enhancing activities for family caregivers of people with frontotemporal dementia.
  Alzheimer disease and associated disorders 2014 Dowling GA, Merrilees J, Mastick J, Chang VY, Hubbard E, Moskowitz JT
• Sleep in persons with frontotemporal dementia and their family caregivers.
  Nursing research 2014 Merrilees J, Hubbard E, Mastick J, Miller BL, Dowling GA
• Implementation of advanced practice nurse clinic for management of behavioral symptoms in dementia: a dyadic intervention (innovative practice).
  Dementia (London, England) 2014 Barton C, Merrilees J, Ketelle R, Wilkins S, Miller B
• Memantine in patients with frontotemporal lobar degeneration: a multicentre, randomised, double-blind, placebo-controlled trial.
  The Lancet. Neurology 2013 Boxer AL, Knopman DS, Kaufer DI, Grossman M, Onyike C, Graf-Radford N, Mendez M, Kerwin D, Lerner A, Wu CK, Koestler M, Shapira J, Sullivan K, Klepac K, Lipowski K, Ullah J, Fields S, Kramer JH, …
• Characterization of apathy in persons with frontotemporal dementia and the impact on family caregivers.
  Alzheimer disease and associated disorders 2013 Merrilees J, Dowling GA, Hubbard E, Mastick J, Ketelle R, Miller BL
• The experience of caregiving: differences between behavioral variant of frontotemporal dementia and Alzheimer disease.
  The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry 2012 Wong C, Merrilees J, Ketelle R, Barton C, Wallhagen M, Miller B
• Trajectories of behavioral disturbance in dementia.
  Journal of Alzheimer's disease : JAD 2012 Chow TW, Fridhandler JD, Binns MA, Lee A, Merrilees J, Rosen HJ, Ketelle R, Miller BL
• Advanced practice nursing: meeting the caregiving challenges for families of persons with frontotemporal dementia.
  Clinical nurse specialist CNS 2010 Merrilees J, Ketelle R
• Cognitive and behavioral challenges in caring for patients with frontotemporal dementia and amyotrophic lateral sclerosis.
  Amyotrophic lateral sclerosis : official publication of the World Federation of Neurology Research Group on Motor Neuron Diseases 2010 Merrilees J, Klapper J, Murphy J, Lomen-Hoerth C, Miller BL
• Rest-activity and behavioral disruption in a patient with frontotemporal dementia.
  Neurocase 2009 Merrilees J, Hubbard E, Mastick J, Miller BL, Dowling GA
• An open-label study of memantine treatment in 3 subtypes of frontotemporal lobar degeneration.
  Alzheimer disease and associated disorders 2009 Boxer AL, Lipton AM, Womack K, Merrilees J, Neuhaus J, Pavlic D, Gandhi A, Red D, Martin-Cook K, Svetlik D, Miller BL
• A model for management of behavioral symptoms in frontotemporal lobar degeneration.
  Alzheimer disease and associated disorders 2007 Merrilees J
• Long-term care of patients with frontotemporal dementia.
  Journal of the American Medical Directors Association 2003 Merrilees JJ, Miller BL