Emily Von Scheven, MD, MAS
Professor
Pediatrics
School of Medicine

My long-term goal is to improve the care and outcomes of children with rheumatic diseases. My research has focused on defining and improving outcomes in pediatric-onset Lupus, evaluating and treating childhood osteoporosis and addressing the transition needs of patients as they transition from pediatric to adult providers. I have experience conducting single-center and multi-center studies of various designs, including cohort studies, RCTs, focus groups, and consensus work.

Education & Training

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• Master's of Advanced Studies Epidemiology & Biostatistics UCSF 2004
• Fellowship Pediatric Rheumatology Children's Hospital of Philadelphia 1995
• Residency Pediatrics Children's National Medical Center 1992
• M.D. School of Medicine Pennsylvania State University 1989

Interests

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• self-management
• health services
• pediatric rheumatology
• childhood-onset rheumatic disease
• lupus
• childhood-onset rheumatic disease outcomes
• disease outcomes
• transition to adulthood
• long-term functional outcomes

Websites

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• UCSF Pediatric Rheumatology (pediatrics.ucsf.edu)
• Clinical Profile at UCSF Benioff Children's Hospital (ucsfbenioffchildrens.org)

Grants and Projects

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• Mentored Patient-oriented Research Career Development, NIH, 2001-2008
• Pediatric Clinical Research Center, NIH, 1981-2007
• Multipurpose Arthritis and Musculoskeletal Diseases Ctr, NIH, 1977-2003

Publications (62)

Top publication keywords:
PediatricsTransition to Adult CareAntibodies, AntiphospholipidArthritis, JuvenileAntirheumatic AgentsHealth PrioritiesAnemia, Hemolytic, AutoimmuneLupus Erythematosus, SystemicAntiphospholipid SyndromeLupus NephritisRheumatologyThrombophiliaPurpura, Thrombocytopenic, IdiopathicRheumatic DiseasesGlucocorticoids

• Children With Enthesitis-Related Arthritis and Possible Benefits From Treatments for Adults With Spondyloarthritis.
  Arthritis care & research 2022 Weiss PF, Fuhlbrigge RC, von Scheven E, Lovell DJ, Colbert RA, Brunner HI, PRCSG Advisory Council and the CARRA Executive Committee
• Engaging patients and parents to improve mental health intervention for youth with rheumatological disease.
  Pediatric rheumatology online journal 2021 Fawole OA, Reed MV, Harris JG, Hersh A, Rodriguez M, Onel K, Lawson E, Rubinstein T, Ardalan K, Morgan E, Paul A, Barlin J, Daly RP, Dave M, Malloy S, Hume S, Schrandt S, Marrow L, Chapson A, Napoli D…
• Research Questions that Matter to Us: priorities of young people with chronic illnesses and their caregivers.
  Pediatric research 2020 von Scheven E, Nahal BK, Cohen IC, Kelekian R, Franck LS
• New Medications Are Needed for Children With Juvenile Idiopathic Arthritis.
  Arthritis & rheumatology (Hoboken, N.J.) 2020 Brunner HI, Schanberg LE, Kimura Y, Dennos A, Co DO, Colbert RA, Fuhlbrigge RC, Goldmuntz E, Kingsbury DJ, Patty-Resk C, Mintz S, Onel K, Rider LG, Schneider R, Watts A, von Scheven E, Lovell DJ, …
• Identifying clinically meaningful severity categories for PROMIS pediatric measures of anxiety, mobility, fatigue, and depressive symptoms in juvenile idiopathic arthritis and childhood-onset systemic lupus erythematosus.
  Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 2020 Mann CM, Schanberg LE, Wang M, von Scheven E, Lucas N, Hernandez A, Ringold S, Reeve BB

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• US Adult Rheumatologists' Perspectives on the Transition Process for Young Adults With Rheumatic Conditions.
  Arthritis care & research 2020 Zisman D, Samad A, Ardoin SP, Chira P, White P, Lavi I, von Scheven E, Lawson EF, Hing M, Mellins ED
• Prioritized Agenda for Mental Health Research in Pediatric Rheumatology from the Childhood Arthritis and Rheumatology Research Alliance Mental Health Workgroup.
  The Journal of rheumatology 2020 Rubinstein TB, Ogbu EA, Rodriguez M, Waqar L, Woo JMP, Davis AM, Lapin WB, Ng L, Treemarcki E, von Scheven E, Knight AM, CARRA Mental Health Workgroup
• Infectious adverse events in children with Juvenile Idiopathic Arthritis treated with Biological Agents in a real-life setting: Data from the JIRcohorte.
  Joint bone spine 2019 Dumaine C, Bekkar S, Belot A, Cabrera N, Malik S, von Scheven A, Carbasse A, Woerner A, Wouters C, Bouayed K, Pillet P, Schroeder S, Hofer M, Hentgen V
• Practice-based differences in paediatric discoid lupus erythematosus.
  The British journal of dermatology 2019 Arkin LM, Buhr K, Brandling-Bennett H, Chiu Y, Chong B, Curran M, Hunt R, Paller AS, Werth VP, Klein-Gitelman M, von Scheven E, Ardalan K
• Longitudinal disease- and steroid-related damage among adults with childhood-onset systemic lupus erythematosus.
  Seminars in arthritis and rheumatism 2019 Heshin-Bekenstein M, Trupin L, Yelin E, von Scheven E, Yazdany J, Lawson EF
• Gaps in Mental Health Care for Youth With Rheumatologic Conditions: A Mixed Methods Study of Perspectives From Behavioral Health Providers.
  Arthritis care & research 2019 Knight A, Vickery M, Faust L, Muscal E, Davis A, Harris J, Hersh AO, Rodriguez M, Onel K, Rubinstein T, Washington N, Weitzman ER, Conlon H, Woo JMP, Gerstbacher D, von Scheven E, Childhood Arthritis …
• Pilot study comparing the childhood arthritis and rheumatology research alliance consensus treatment plans for induction therapy of juvenile proliferative lupus nephritis.
  Pediatric rheumatology online journal 2018 Cooper JC, Rouster-Stevens K, Wright TB, Hsu JJ, Klein-Gitelman MS, Ardoin SP, Schanberg LE, Brunner HI, Eberhard BA, Wagner-Weiner L, Mehta J, Haines K, McCurdy DK, Phillips TA, Huang Z, von Scheven …
• Autoimmune haemolytic anaemia and autoimmune thrombocytopenia in childhood-onset systemic lupus erythematosus: updates on pathogenesis and treatment.
  Current opinion in rheumatology 2018 Neely J, von Scheven E
• A 6-month, multicenter, open-label study of fixed dose naproxen/esomeprazole in adolescent patients with juvenile idiopathic arthritis.
  Pediatric rheumatology online journal 2018 Lovell DJ, Dare JA, Francis-Sedlak M, Ball J, LaMoreaux BD, Von Scheven E, Reinhardt A, Jerath R, Alpan O, Gupta R, Goldsmith D, Zeft A, Naddaf H, Gottlieb B, Jung L, Holt RJ
• Final adult height of patients with childhood-onset systemic lupus erythematosus: a cross sectional analysis.
  Pediatric rheumatology online journal 2018 Heshin-Bekenstein M, Perl L, Hersh AO, von Scheven E, Yelin E, Trupin L, Yazdany J, Lawson EF
• Adverse pregnancy outcomes in adolescents and young women with systemic lupus erythematosus: a national estimate.
  Pediatric rheumatology online journal 2018 Ling N, Lawson E, von Scheven E
• The Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans: Toward Comparative Effectiveness in the Pediatric Rheumatic Diseases.
  Arthritis & rheumatology (Hoboken, N.J.) 2018 Ringold S, Nigrovic PA, Feldman BM, Tomlinson GA, von Scheven E, Wallace CA, Huber AM, Schanberg LE, Li SC, Weiss PF, Fuhlbrigge RC, Morgan EM, Kimura Y
• Malignancy in Pediatric-onset Systemic Lupus Erythematosus.
  The Journal of rheumatology 2017 Bernatsky S, Clarke AE, Zahedi Niaki O, Labrecque J, Schanberg LE, Silverman ED, Hayward K, Imundo L, Brunner HI, Haines KA, Cron RQ, Oen K, Wagner-Weiner L, Rosenberg AM, O'Neil KM, Duffy CM, von …
• Clinical characteristics of children with membranous lupus nephritis: the Childhood Arthritis and Rheumatology Research Alliance Legacy Registry.
  Lupus 2016 Boneparth A, Wenderfer SE, Moorthy LN, Radhakrishna SM, Sagcal-Gironella AC, von Scheven E, CARRA Registry investigators
• Malignancy incidence in 5294 patients with juvenile arthritis.
  RMD open 2016 Zahedi Niaki O, Clarke AE, Ramsey-Goldman R, Yeung R, Hayward K, Oen K, Duffy CM, Rosenberg A, O'Neil KM, von Scheven E, Schanberg L, Labrecque J, Tse SM, Hasija R, Lee JL, Bernatsky S
• Identifying Targets for Improving Mental Healthcare of Adolescents with Systemic Lupus Erythematosus: Perspectives from Pediatric Rheumatology Clinicians in the United States and Canada.
  The Journal of rheumatology 2016 Knight AM, Vickery ME, Muscal E, Davis AM, Harris JG, Soybilgic A, Onel KB, Schanberg LE, Rubinstein T, Gottlieb BS, Mandell DS, von Scheven E, CARRA Investigators
• Practice patterns and approach to kidney biopsy in lupus: a collaboration of the Midwest Pediatric Nephrology Consortium and the Childhood Arthritis and Rheumatology Research Alliance.
  Pediatric rheumatology online journal 2015 Wenderfer SE, Lane JC, Shatat IF, von Scheven E, Ruth NM
• Glucocorticoid-associated osteoporosis in chronic inflammatory diseases: epidemiology, mechanisms, diagnosis, and treatment.
  Current osteoporosis reports 2014 von Scheven E, Corbin KJ, Stagi S, Stefano S, Cimaz R
• Educational and vocational outcomes of adults with childhood- and adult-onset systemic lupus erythematosus: nine years of followup.
  Arthritis care & research 2014 Lawson EF, Hersh AO, Trupin L, von Scheven E, Okumura MJ, Yazdany J, Yelin EH
• Atypical cases of scleroderma en coup de sabre.
  Journal of child neurology 2014 Kraus V, Lawson EF, von Scheven E, Tihan T, Garza J, Nathan RG, Cordoro KM, Waubant E
• Secondary analysis of APPLE study suggests atorvastatin may reduce atherosclerosis progression in pubertal lupus patients with higher C reactive protein.
  Annals of the rheumatic diseases 2013 Ardoin SP, Schanberg LE, Sandborg CI, Barnhart HX, Evans GW, Yow E, Mieszkalski KL, Ilowite NT, Eberhard A, Imundo LF, Kimura Y, Levy D, von Scheven E, Silverman E, Bowyer SL, Punaro L, Singer NG, …
• Cancer risk in childhood-onset systemic lupus.
  Arthritis research & therapy 2013 Bernatsky S, Clarke AE, Labrecque J, von Scheven E, Schanberg LE, Silverman ED, Brunner HI, Haines KA, Cron RQ, O'Neil KM, Oen K, Rosenberg AM, Duffy CM, Joseph L, Lee JL, Kale M, Turnbull EM, Ramsey-…
• Perception of transition readiness and preferences for use of technology in transition programs: teens' ideas for the future.
  International journal of adolescent medicine and health 2013 Applebaum MA, Lawson EF, von Scheven E
• Inactive disease and remission in childhood-onset systemic lupus erythematosus.
  Arthritis care & research 2012 Mina R, Klein-Gitelman MS, Ravelli A, Beresford MW, Avcin T, Espada G, Eberhard BA, Schanberg LE, O'Neil KM, Silva CA, Higgins GC, Onel K, Singer NG, von Scheven E, Imundo LF, Nelson S, Giannini EH, …
• Consensus treatment plans for induction therapy of newly diagnosed proliferative lupus nephritis in juvenile systemic lupus erythematosus.
  Arthritis care & research 2012 Mina R, von Scheven E, Ardoin SP, Eberhard BA, Punaro M, Ilowite N, Hsu J, Klein-Gitelman M, Moorthy LN, Muscal E, Radhakrishna SM, Wagner-Weiner L, Adams M, Blier P, Buckley L, Chalom E, Chédeville G…
• Use of atorvastatin in systemic lupus erythematosus in children and adolescents.
  Arthritis and rheumatism 2012 Schanberg LE, Sandborg C, Barnhart HX, Ardoin SP, Yow E, Evans GW, Mieszkalski KL, Ilowite NT, Eberhard A, Imundo LF, Kimura Y, von Scheven E, Silverman E, Bowyer SL, Punaro M, Singer NG, Sherry DD, …
• Self-management skills in adolescents with chronic rheumatic disease: A cross-sectional survey.
  Pediatric rheumatology online journal 2011 Lawson EF, Hersh AO, Applebaum MA, Yelin EH, Okumura MJ, von Scheven E
• Preliminary criteria for global flares in childhood-onset systemic lupus erythematosus.
  Arthritis care & research 2011 Brunner HI, Mina R, Pilkington C, Beresford MW, Reiff A, Levy DM, Tucker LB, Eberhard BA, Ravelli A, Schanberg LE, Saad-Magalhaes C, Higgins GC, Onel K, Singer NG, von Scheven E, Itert L, Klein-…
• Adult outcomes of childhood-onset rheumatic diseases.
  Nature reviews. Rheumatology 2011 Hersh A, von Scheven E, Yelin E
• Vitamin D supplementation in the pediatric rheumatology clinic.
  Current rheumatology reports 2011 von Scheven E, Burnham JM
• Assessment of bone remodelling in childhood-onset systemic lupus erythematosus.
  Rheumatology (Oxford, England) 2010 Baker-LePain JC, Nakamura MC, Shepherd J, von Scheven E
• Laboratory markers of cardiovascular risk in pediatric SLE: the APPLE baseline cohort.
  Lupus 2010 Ardoin SP, Schanberg LE, Sandborg C, Yow E, Barnhart HX, Mieszkalski Kl, Ilowite NT, von Scheven E, Eberhard A, Levy DM, Kimura Y, Silverman E, Bowyer SL, Punaro L, Singer NG, Sherry DD, McCurdy D, …
• Toward the development of criteria for global flares in juvenile systemic lupus erythematosus.
  Arthritis care & research 2010 Brunner HI, Klein-Gitelman MS, Higgins GC, Lapidus SK, Levy DM, Eberhard A, Singer N, Olson JC, Onel K, Punaro M, Schanberg L, von Scheven E, Ying J, Giannini EH
• What's new in paediatric SLE?
  Best practice & research. Clinical rheumatology 2009 von Scheven E, Bakkaloglu A
• Teaching musculoskeletal physical diagnosis using a web-based tutorial and pathophysiology-focused cases.
  Medical education online 2009 Modica RF, Thundiyil JG, Chou C, Diab M, Von Scheven E
• Relation of body fat indexes to vitamin D status and deficiency among obese adolescents.
  The American journal of clinical nutrition 2009 Lenders CM, Feldman HA, Von Scheven E, Merewood A, Sweeney C, Wilson DM, Lee PD, Abrams SH, Gitelman SE, Wertz MS, Klish WJ, Taylor GA, Chen TC, Holick MF, Elizabeth Glaser Pediatric Research Network …
• The challenges of transferring chronic illness patients to adult care: reflections from pediatric and adult rheumatology at a US academic center.
  Pediatric rheumatology online journal 2009 Hersh AO, Pang S, Curran ML, Milojevic DS, von Scheven E
• Premature atherosclerosis in pediatric systemic lupus erythematosus: risk factors for increased carotid intima-media thickness in the atherosclerosis prevention in pediatric lupus erythematosus cohort.
  Arthritis and rheumatism 2009 Schanberg LE, Sandborg C, Barnhart HX, Ardoin SP, Yow E, Evans GW, Mieszkalski KL, Ilowite NT, Eberhard A, Levy DM, Kimura Y, von Scheven E, Silverman E, Bowyer SL, Punaro L, Singer NG, Sherry DD, …
• Differences in long-term disease activity and treatment of adult patients with childhood- and adult-onset systemic lupus erythematosus.
  Arthritis and rheumatism 2009 Hersh AO, von Scheven E, Yazdany J, Panopalis P, Trupin L, Julian L, Katz P, Criswell LA, Yelin E
• Pediatric bone density and fracture.
  Current osteoporosis reports 2007 von Scheven E
• Does calcium supplementation increase bone mineral density in healthy children?
  Nature clinical practice. Rheumatology 2007 von Scheven E
• Epstein-Barr virus-associated B cell lymphoproliferative disease in a child with neonatal-onset multisystem inflammatory disease.
  Arthritis and rheumatism 2006 Modica R, Emery H, Lam W, Hermiston M, Grenert J, Wirt M, von Scheven E
• Neuropsychiatric manifestations in pediatric systemic lupus erythematosus and association with antiphospholipid antibodies.
  The Journal of rheumatology 2006 Harel L, Sandborg C, Lee T, von Scheven E
• Variable deficits of bone mineral despite chronic glucocorticoid therapy in pediatric patients with inflammatory diseases: a Glaser Pediatric Research Network study.
  Journal of pediatric endocrinology & metabolism : JPEM 2006 von Scheven E, Gordon CM, Wypij D, Wertz M, Gallagher KT, Bachrach L
• Neonatal-onset multisystem inflammatory disorder: the emerging role of pyrin genes in autoinflammatory diseases.
  Archives of dermatology 2005 Kilcline C, Shinkai K, Bree A, Modica R, Von Scheven E, Frieden IJ
• Association between beta2-glycoprotein I gene polymorphisms and pediatric SLE and antiphospholipid antibodies.
  Lupus 2005 von Scheven E, Elder ME
• Assessment of atherosclerotic risk factors and endothelial function in children and young adults with pediatric-onset systemic lupus erythematosus.
  Arthritis and rheumatism 2004 Soep JB, Mietus-Snyder M, Malloy MJ, Witztum JL, von Scheven E
• Back to school on APS: rethinking the risk of recurrent stroke in children.
  Neurology 2004 Fullerton HJ, Von Scheven E
• Thrombosis and pediatric Wegener's granulomatosis: acquired and genetic risk factors for hypercoagulability.
  Arthritis and rheumatism 2003 von Scheven E, Lu TT, Emery HM, Elder ME, Wara DW
• Anti-beta2-glycoprotein I antibodies in pediatric systemic lupus erythematosus and antiphospholipid syndrome.
  Arthritis and rheumatism 2002 von Scheven E, Glidden DV, Elder ME
• Systemic lupus erythematosus and antiphospholipid syndrome in children and adolescents.
  Current opinion in rheumatology 2001 Lee T, von Scheven E, Sandborg C
• Pediatric Wegener's granulomatosis complicated by central nervous system vasculitis.
  Pediatric neurology 1998 von Scheven E, Lee C, Berg BO
• Aberrant intermolecular disulfide bonding in a mutant HLA-DM molecule: implications for assembly, maturation, and function.
  Journal of immunology (Baltimore, Md. : 1950) 1998 Busch R, Doebele RC, von Scheven E, Fahrni J, Mellins ED
• Clinical characteristics of antiphospholipid antibody syndrome in children.
  The Journal of pediatrics 1996 von Scheven E, Athreya BH, Rose CD, Goldsmith DP, Morton L
• Analysis of HLA-DMB mutants and -DMB genomic structure.
  Immunogenetics 1995 Shaman J, von Scheven E, Morris P, Chang MD, Mellins E
• Hygienic problems in anaesthesia and intensive care therapy.
  Praktische Anasthesie, Wiederbelebung und Intensivtherapie 1976 Von Scheven E, Dietzel W
• [Chemical disinfection of anaesthetic equipment (author's transl)].
  Praktische Anasthesie, Wiederbelebung und Intensivtherapie 1974 Dietzel W, von Scheven E, Botzenhart K